Parkinson's Resource Center

Serving to enhance to lives of those affected by Parkinson's thru education, awareness and empowerment.

April is Parkinson’s Awareness Month

Parkinson’s Resource Center
910 W. 5th Ave, Suite 256 * Spokane * WA * 99204 * 509-473-2490
email: center@spokaneparkinsons.org
 

As we come to the finish of Parkinson’s Awareness Month, we’d like to thank Walt and Shirley Jakubowski and the Spokane 

Tremble Clefs, Family First Senior Care, Famous Ed’s, Monterey Cafe, River Park Square, Leiwiston Civic Theater, KHQ and all the volunteer and supporters who have joined us in raising Parkinson’s Awareness! Thank you!

PRC Downloadable PDF Calendar..click here.


2 Responses to “April is Parkinson’s Awareness Month”

  1. Beverley Novin says:

    I work in the newsroom at KHQ TV in Spokane. I would like to speak with someone locally about getting a parkinsons staff member down to our studio to facebook on the 22nd of April in our morning show. I can give you more details as soon as I have a # or email. My direct # is 448-3245.
    Thank you
    Beverley Novin KHQ

    • Admin says:

      Beverley!
      I am so glad for your contact for many reasons but it also helped me to realize that our website was not displaying properly and that our address and contact information were not displayed either! Thank you and we look forward to the 22nd and being at KHQ for the Facebook Connect during the KHQ morning show.

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TeleHealth Sites and Contact Information

The current monthly TeleHealth sites:

  • Anchorage, AK – Providence Hospital – Room 2401 – Contact: Christie Artuso – 907-212-3138
  • Billings, MT – Deaconess Billings Clinic – Room – Telemedicine Studio, Mary Alice Fortin Health Conference Center – Contact: Mark Horn or Mike Roscoe – 406-657-4970
  • Clarkston, WA – Tri-State Memorial Hospital – Conference Room A – Contact: Maria Nielson – 509-758-5511
  • Coeur d’Alene, ID – Kootenai Health – KMS Education Room 1 – Contact: Tom Hauer – 208-666-2987
  • Colfax, WA – Whitman County Hospital – Annex Room 3 – Contact: Laura Gronning – 509-387-3435 ext. 322
  • Colville, WA – Providence Mount Carmel Hospital – Health Education Center – Contact: Maureen O’Fearna – 509-685-5450
  • Dayton, WA – Dayton General Hospital – Admin. Conference Room – Contact: Gary Schroeder – 509-382-2531 ext. 127
  • Grangeville, ID – Syringa Hospital/Clinic – Conference Room – Contact: Joanne Smith: 208-983-1700
  • Kennewick, WA – Kennewick General Hospital – Battelle Rooms, Family Health Center – Contact: Angel L. Trump – 509-586-5119
  • Kirkland, WA 98034 – Evergreen Hospital Surgery and Physician Center (12333 NE 130th Lane) – Room TAN 134 or TAN 101 – Contact: Shelly Henderson – 425.899.2660
  • Miles City, MT – Community Mental Health Center – Telemedicine Room – Contact: Nicole Hart – 406-233-2600
  • Moses Lake, WA – Samaritan Healthcare – Education Center, 4th Floor – Contact: Melissa Lightel – 509-793-9690
  • Newport, WA – Community Hospital – Sandifer Room – Contact: Nancy Shaw – 509-447-9307
  • Othello, WA – Othello Community Hospital – Administration Conference Room – Contact: Mike Richards – 509-331-2600
  • Pendleton, OR – Pendleton Public Library – Community Hall – Contact: Mary Finney – 541-276-1881
  • Port Townsend, WA – Jefferson Healthcare – Puget Room – Contact: Karen Elliot – 360-385-2200
  • Pullman, WA – Pullman Region Hospital – Contact: Bonnie J. Martin – 509-336-7514
  • Ritzville, WA – East Adams Rural Hospital – Conference Room – Contact: Vicky Johnson – 509-659-5404
  • Spokane, WA – St. Luke’s Rehab Center – Auditorium – Contact: Cyndi Cook – 509-473-2490
  • Tonasket, WA – North Valley Hospital – Board Room – Contact: Connie Maden – 509-486-3118
  • Walla Walla, WA – St. Mary’s Medical Center – Vincentian Room – Contact: Debbie Deccio – 509-522-5835 ext. 2835

2013 TeleHealth Schedule

January – Music Therapy and Parkinson’s Disease – Carla Carnegie, MT-BC – Live Music Therapy Session

February –Eat Well with Parkinson’s Disease – Based on Katherine Holden’s Book – Presenter – Cyndi Cook, Director

March – Dr. Montine, University of Washington – Latest Research on the possible causes and prevention of PD

April – Parkinson’s Awareness Month – Parkinson’s Panel – Hear from those affected by Parkinson’s Disease including Pharm. D., Young Onset PD Patient diagnosed at 31 and more.

May – Tools to help you stay active and in your home – Jennifer Ams, Family First Senior Care

June – Speech Therapy – Including a live session with Dorreen Nicholas, Speech Therapist with Eastern WA Hearing and Speech Clinic

2013 July to December will be updated and posted soon! Please call 509-473-2490 if you have questions.

 

2012 Past TeleHealth Presentations – July to December

July – How to advocate for yourself in a hospital, retirement home, with your doctor –

August – Parkinson’s Disease and Lewy Body Dementia – taming the sleeping bear – Helen Whitworth, BSN and Jim Whitworth, LBDA

September – Pre-clinical and early clinical symptoms of Parkinson’s disease – Dr. Britt, Neurologist

October – Vision Challenges with Parkinson’s Disease – Dr. Eugene May

November – Caregiving – Hilary Haptman from State caregiving office

December – Deep Brain Stimulation and help for Parkinson’s Disease – Jamie Mark, ARNP and Dr. Carlson, MD


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Support Groups


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Activities for PD

Here you will find information about Activities designed specifically for people affected by Parkinson’s Disease. At this time you will find information about the our Monthly TeleHealth Broadcasts, Tremble Clef’s Voice Therapy and Singing Group and Dance for PD.  As more activites begin you will find them on our Monthly Calendar found on our website along with the activities mentioned above. Do you have information to share about an activity for those affected by Parkinson’s Disease? Call the PRC at 509-473-2490 or email us at center@spokaneparkinsons.org.


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Monthly Calendar

Parkinson’s Resource Center May 2013 Calendar  (Downloadable PDF Version Click Here)

Parkinson’s Resource Center May Calendar 2013


2 Responses to “Monthly Calendar”

  1. amy says:

    My father has had PD for 30 years. I am 31 and my mother has now passed. He will need me. He has done DBS and has just been diagnosed with Osteoperosis. I would like to become involved in the foundation somehow. What is the next thing that I can come to that I may learn more about caring for him. I need some direction-please help.
    Thank you,
    Amy Olson

    • Admin says:

      Hello.
      Thank you for your post to our website. We have had some issues with being able to respond to posts to our website. We have several support groups and activities for those with Parkinson’s Disease. We have two support groups for Caregivers, they are closed groups but I believe after the new year there will be space to join and we have several people working to create new support groups for caregivers. Please contact me at my email address center@spokaneparkinsons.org and I will be happy to send you any information that I can to help you and your family.
      My Best,
      Cyndi Cook
      Resource Director

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Privacy Policy and Contacting Us

We at the Parkinson’s Resource Center (PRC) want this site to be a safe and private place for users. The PRC does its part by not requiring you to register or provide any information at all to use most features of this Web site. In turn, you can do your part by reading this policy and taking the steps outlined below.

There are certain actions and areas of the site that may require you to provide personal information, such as:

  1. leaving a comment or asking a question on the blog sections
  2. making a donation through PayPal
  3. requesting to be added to the e-mail or newsletter list(s)
  4. requesting free materials such as DVD recordings

Whenever you provide personal information, you should be mindful of the terms of this privacy policy, as it will govern our use of the information you have provided.

We will update this privacy policy as we deem necessary, so be sure to reread it from time to time. By submitting information to us, you agree that PRC may use the information in accordance with this privacy policy.

Personal Information You Choose to Provide

In order to gain access to certain areas of our site, you may choose to provide information. If you do submit information to us, we will use that information for the purposes for which it was submitted. We may also use your information in other ways, such as to contact you about other PRC activities and/or fundraising campaigns or as otherwise disclosed to you at the point of collection. For example:

  • If you join our e-mail list, we will have a record of your e-mail address and all other information you choose to provide. We may contact you by e-mail about a broad range of PRC activities.
  • If you make an online donation to the PRC, your information will be added to our donor list and database, and you will be contacted about other PRC activities, news, and/or fundraising campaigns.
  • If you request that we send you printed or recorded materials.

Do you have an inspirational personal story to share?

We will gladly receive any other information you choose to share, such as optional information or the personal stories you submit. By submitting the story to us, you give us permission to edit it, post it on the PRC website, and use it in appropriate settings designed to illustrate the importance of empowerment, education, and awareness to all who are touched by Parkinson’s. If you choose to remain anonymous, please do not include any identifying information in your personal story. NOTE: all comments left on the pages of this website are screened before being posted for public view.

You should be aware that we use third-party vendors to provide information on this website and in our offline business operations. The information that you submit on this site may be provided to those vendors on a confidential basis so that those vendors can provide services (such as maintaining our database, sending e-mail messages, facilitating our fundraising activities and campaigns, or processing credit card transactions) on our behalf.

Other than as described in this privacy policy, or as may be necessary to protect the rights, property, and safety of our organization, our donors, or others, or as may be necessary to comply with applicable law, PRC will not give or sell the personal information you provide online.

Financial Information You Choose to Provide Through PayPal

The PRC uses PayPal for all of our online donations. If you choose to make an online donation to the PRC, you will have to provide your credit card billing information.

Safeguarding your financial and personal information is one of our most important priorities. That’s why PayPal automatically encrypts all sensitive information sent between your computer and the PayPal servers.

  • Your computer: When registering or logging in to our site, we verify that your internet browser is running Secure Sockets Layer 3.0 (SSL) or higher.
  • In transit: Information is protected by SSL with an encryption key length of 168 bits (the highest level commercially available).
  • PayPal servers: Your personal information is stored on our servers and heavily guarded, both physically and electronically. To further shield your credit card and bank numbers, we do not directly connect our firewall-protected servers to the internet.
  • If you are making a donation, the credit card information that you provide at the time of donation is used only to process your donation and will not be used for any other purposes.

Information Automatically Collected and Stored

As is true of most websites you enter, we automatically collect and store some information about your computer and your visit and store it in log files. This information includes information such as your computer’s (or your ISP’s) Internet Protocol (IP) address (this is not your e-mail address); the domain from which you access the Internet (e.g., “AOL.com” or “Princeton.edu”); the name, version, and specifications of your computer and your computer’s operating system; the Internet address of the website, if any, from which you came to our site; the date and time you arrived at our site and how long you spent on the site; and which pages you visited.

We use this information to formulate statistics through Laughing Squid and WordPress that show the number of visitors to the different sections of our site, the pages visited and the amount of time spend on each page. This information helps us make our site more useful to visitors, but the statistics do not reveal personal information.

Although this site has security measures in place to protect the loss, misuse, and alteration of the information under our control, no e-mail or web transmission is completely secure against interception. If you are worried because your communication is very sensitive, do not send it via e-mail or submit it online in the blog forum. Instead, call the PRC (509) 473-2490.

Remember that  when you visit other websites including webpages within www.SpokaneParkinsons.org that belong to other organizations, check each one’s privacy policy yourself, and be careful about the information give.

How to contact the Parkinson’s Resource Center of Spokane about your information: If you do not want to receive any e-mail from us in the future, send an e-mail message to center@spokaneparkinsons.org indicating that you would like to removed from our electronic mailing list. Note that your donation and/or Team Parkinson’s records will remain in the PRC databases, but your e-mail address will be deactivated.

  • If you wish to review the contact information we have on file for you, correct your contact information or provide a change of address, or inform us how you wish your contact information to be used, please contact Center@SpokaneParkinsons.org.

You may contact the PRC by mail, e-mail, or telephone, as follows:

Phone (509) 473-2490

Fax (509) 472-2495

email : center@spokaneparkinsons.org

Our address:

Parkinson’s Resource Center of Spokane

910 W 5th Ave., Suite 256

Spokane, WA 99204-2973

Disclaimer

The information contained on our Website is to provide information and education only and should not be used for diagnosis, treatment or other healthcare advice. You should always consult with your physician or other healthcare provider.

Changes

Any changes in PRC’s privacy policy will be promptly be noted at this location, so please check this page periodically


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Meet the PRC Staff and Board of Directors

Staff -

     Cyndi Cook, BS., MIM -  Resource Director

Board of Directors -

     John Cahill, TEVA Neuroscience, Inc, Sales Specialist – President

     Jamie Mark, ARNP Neurology Specialist at Northwest Collaborative CareSecretary

     Jake Timm, Financial Advisor, TENCAPITAL

     Lindy (Wood) Swain, Pharm.D. — Past President

     Frank D. Cholaj, RPh, M.B.A., Manager of National GPO/Hospital Accounts at Lilly & Co.

     Shelia Geraghty, M.A., Business Administrator at Salvation Army

     Walter Jakubowski, M.S. Consultant at WaltJay Consulting

     Pat Kautzman, Medtronic representative 

     Mike Johnson, WA Trust Bank, Mobile Branches

     Dave Vahala, Travel Leaders, Director of Marketing and Sales

     Ingrid Van Anrooy, PT, PhD – Brighton Rehabilitation

     Julie Watts, Attorney at LawWee and Watts Attorney at Law

Members at Large:

    JD Meacham, M.A., Executive Director of Neuroscience Nursing Foundation; Executive Director of World Federation of Neuro-science     Nurses; Organizational Partner of World Parkinson’s Congress.

    Ian Riley, Owner of Oz Fitness, Inc. and the Black Pearl Restaurant

    Celeste Shaw, RN, Owner of Chaps Restaurant and Cake the Bakery at Chaps

Member Emeritus

    Ed Ewell, R.Ph., Retired Pharmacist and Pharmacy Owner and PRC Co-founder

Blog


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How can you help

On-line Donation FAQ

The PRC offers support groups, DVDs, TeleHealth programs, books, pamphlets, and more all for FREE thanks to the people who send us donations. We can’t thank you enough!

See that little Donate button to the left of your screen? When you click on that you are taken to a secure connection with PayPal. If you don’t have a PayPal account don’t worry; you don’t need a PayPal account to make a donation!

Click on the Donate button, and then at the bottom left of the next screen you’ll see:

Don’t have a PayPal account?