Contact Information:

 910 W 5th Ave., Suite 256
 Spokane, WA 99204
 Phone: (509) 473-2490
 Fax: (509) 473-2495
 Email: center@spokaneparkinsons.org

 

On the first weekend of June 2011, the high-pitched whine of Ferrari, Porsche, Alfa Romeo and Lotus race cars will mix with the low rumble of Corvettes, Ford Cobras, Chevrolet Camaros and Ford Mustangs as the Society of Vintage Racing Enthusiasts (SOVREN) holds the first annual “Spokane Festival of Speed” at Spokane County Raceway. More than 150 vintage sports cars, sedans, and formula racing cars of the 1950s, ’60s and ’70s are expected to travel from all over the Pacific Northwest to compete in three days of racing on the long straights and tight hairpin corners of the 2.25-mile road course. 

 Racing enthusiasts Bill Simer, Jim Sullivan, Bruce Hunt, Jim Sloane and Paul Jaremko are the local organizers for this SOVREN event; Jaremko Nissan and other local businesses are providing sponsorship and support to cover event expenses. Sanctioning for this first-ever vintage race car event in Spokane was made possible, in part, by the recent revisions and safety improvements made to the race track by Spokane County. These revisions to the road course make the racing facility a much more attractive venue for the rare and expensive vintage race cars that compete in the SOVREN racing series, as well as making the facility safer for participants and spectators.

All spectator admissions from the race will benefit the Parkinson’s Resource Center of Spokane (the PRC), a 501(c)3 charitable nonprofit organization that offers a unique and comprehensive menu of free services to Inland Northwest PD clients and their family members, caregivers and friends who support them. The vision of founder Ed Ewell, diagnosed with Parkinson’s disease in 1999, and his wife Jacquie has come to fruition with the PRC and its mission: “Serving to enhance the quality of life of people affected by Parkinson’s disease through empowerment, education and awareness.”

 The PRC offers support groups (including for women with PD, for those with young-onset PD, for caregivers and for those with dystonia) plus fun and therapeutic activities: The Tremble Clefs have a great time singing popular favorites while getting the therapeutic benefits of facial and speech therapy; the popular Dance for PD group gains fluid movement, balance and flexibility while dancing to live accompaniment in a dance studio with a certified instructor; and the annual Carnival of Wellness is a collaboration among experts in pharmacy, physical and occupational therapy, speech therapy and medical care, all focusing on quality of life with PD. Throughout Washington, Oregon, Idaho, Montana and Utah, including in under-served rural communities, the PRC partners to provide monthly TeleHealth interactive video conferences with experts on various aspects of life with PD.

The PRC strives to expand proven and innovative programs for the benefit of the Parkinson’s disease community and depends upon volunteers and donations. The PRC board of directors, staff and clients are most grateful to be named the beneficiary of the first annual “Spokane Festival of Speed” vintage car racing event, June 3-5, presented by the Society of Vintage Racing Enthusiasts (SOVREN).

For more information about the PRC go to our Facebook page, follow along on Twitter, or phone the office at (509) 473-2490. For more information about the Society of Vintage Racing Enthusiasts (SOVREN), visit www.sovren.org.

 

Postmedia February 18, 2011 Be the first to post a comment

WINDSOR, Ont. — The Michael J. Fox Foundation has approved $476,000 for pre-clinical trial research on a formula that has already been shown by University of Windsor researchers to effectively stop the progression of Parkinson’s disease in rats.

Two years ago, Windsorite Joseph Szecsei, 81, donated $50,000 so the Windsor researchers could buy a stereologer microscope system, a machine that accurately counts the dopamine neurons in the brain that are killed by Parkinson’s.

In the lab, the formula they were testing, called water-soluble CoQ10, halted the progression of the disease. The data collected thanks to the stereologer system helped convince the Michael J. Fox Foundation to fund this next phase of research.

Though it will be overseen by a New Jersey pharmaceutical company, Zymes LLC, which owns the rights to the formula, the U of W and Dr. Marianna Sikorska of the Ottawa-based National Research Council will be doing the actual research.

© Copyright (c) Postmedia News

 

New Genetic Clues to Parkinson’s Disease

Researchers Identify Genetic Variants That May Be Linked to Parkinson’s
By Bill Hendrick
WebMD Health News
mature man

Feb. 1, 2011 — A new set of genetic variants has been implicated in the search for genetic risk factors that could lead to the development of Parkinson’s disease.

Researchers say six genetic factors that apparently affect the neurological disease have been previously identified. But in a new study, the researchers say they have now identified five more of the variants.

The research, a collaboration of investigators in the U.S., U.K., Germany, France, the Netherlands, and Iceland, is published online in the Feb. 2 issue of The Lancet.

Researchers say the study is the product of the largest genetic analysis of Parkinson’s disease ever done and that about 7.7 million possible variants were examined.

Genetic Roots of Parkinson’s

The researchers found that 20% of patients with the highest number of risk variants were 2.5 times more likely to develop Parkinson’s disease than the 20% of patients with the fewest genetic risk factors. The study results could point to new genes that need to be studied as scientists focus on genetic roots of Parkinson’s. The new findings have not been validated for clinical use.

The researchers say their study could be a starting point into further investigations of the causes of Parkinson’s.

“This study provides evidence that common genetic variation plays an important part in the cause of Parkinson’s disease,” the researchers write. “We have confirmed a strong genetic component to Parkinson’s disease which, until recently, was thought to be completely caused by environmental factors.”

The study concludes that the findings “provide an insight into the genetics of Parkinson’s disease” and its molecular cause and “could provide future targets for therapies.”

SOURCES:

News release, The Lancet.

Singleton, A. The Lancet, Feb. 2, 2011.

© 2011 WebMD, LLC. All rights reserved.

 

New Genetic Clues to Parkinson’s Disease

Researchers Identify Genetic Variants That May Be Linked to Parkinson’s
By Bill Hendrick
WebMD Health News
mature man

Feb. 1, 2011 — A new set of genetic variants has been implicated in the search for genetic risk factors that could lead to the development of Parkinson’s disease.

Researchers say six genetic factors that apparently affect the neurological disease have been previously identified. But in a new study, the researchers say they have now identified five more of the variants.

The research, a collaboration of investigators in the U.S., U.K., Germany, France, the Netherlands, and Iceland, is published online in the Feb. 2 issue of The Lancet.

Researchers say the study is the product of the largest genetic analysis of Parkinson’s disease ever done and that about 7.7 million possible variants were examined.

Genetic Roots of Parkinson’s

The researchers found that 20% of patients with the highest number of risk variants were 2.5 times more likely to develop Parkinson’s disease than the 20% of patients with the fewest genetic risk factors. The study results could point to new genes that need to be studied as scientists focus on genetic roots of Parkinson’s. The new findings have not been validated for clinical use.

The researchers say their study could be a starting point into further investigations of the causes of Parkinson’s.

“This study provides evidence that common genetic variation plays an important part in the cause of Parkinson’s disease,” the researchers write. “We have confirmed a strong genetic component to Parkinson’s disease which, until recently, was thought to be completely caused by environmental factors.”

The study concludes that the findings “provide an insight into the genetics of Parkinson’s disease” and its molecular cause and “could provide future targets for therapies.”

SOURCES:

News release, The Lancet.

Singleton, A. The Lancet, Feb. 2, 2011.

© 2011 WebMD, LLC. All rights reserved.

 

This article makes me think of our own Tremble Clefs here in Spokane!

Health | 31.01.2011

Researchers prescribe choir rehearsals for Parkinson’s patients

Großansicht des Bildes mit der Bildunterschrift: Singing is fun – but researchers say it can be good for your health too

Everyone knows singing makes you feel good. Now researchers are trying to provide scientific evidence to support this claim in the treatment of serious illnesses like Parkinson’s and respiratory diseases.

Monica was diagnosed with Parkinson’s disease almost nine years ago and she has been a member of the Sing for Joy choir ever since. The choir was set up in 2003 especially for sufferers of the progressive neurological condition.

“My voice can go quite easily when my Parkinson’s is bad,” she said. “The singing can help me to project, it keeps my mouth muscles exercised because Parkinson’s can actually atrophy all your muscles if you don’t work really hard and the voice is like any other muscle, if you don’t work it, it goes.”

New field of research

Surprisingly, very little scientific research has been undertaken to back very real claims like these. Nevertheless, the UK-based Sydney De Haan Research Centre for Arts and Health has been trying to promote the value of singing for wellbeing since 2005.

“People who are working in medicine and thinking about health issues from a medical perspective have not really considered the role that creative activities can have for people in relation to their health,” commented director Stephen Clift.

The center is about to embark on a major study on the value of singing for people with chronic respiratory illness. The study will use standardized assessment techniques to measure lung function, breathing patterns and general activity levels before and after a course of singing lessons.

Clift hopes to prove that breathing control elements involved in singing could be a useful intervention in helping people manage their condition and, importantly, to manage stress levels.

Bildunterschrift: Großansicht des Bildes mit der Bildunterschrift:  Parkinson’s attacks muscles, including the vocal chords

“Breathlessness can be very anxiety provoking and frightening and so they have to learn to manage that,” said Clift. “We think singing could give people the confidence to do more than they think.”

Traditional divides

It is not just scientific snobbery that is to blame for the delay in research results, warms Clift.

“Creative artists such as musicians or painters have a little bias against thinking about what they are doing from a scientific perspective,” he said. “It’s very much a case of bringing together two areas of life which are seen to be very separate.”

Wolfgang Bossinger has been a music therapist in psychiatric hospitals in Germany for 25 years. Spurred on by the runaway success of a choir he formed in his own hospital in 2006, he decided to found Singing Hospitals in 2009.

There are now 11 certified hospitals that run choirs for patients around Germany, with one in Romania and the first in Austria opening this year.

Social advantages

“Forming choirs allows us to create a social network,” said Bossinger. “This helps people not to get back in isolation once they have left hospital and allows them to feel connected in this group,” he continued.

It is this socializing aspect that is especially powerful for sufferers of diseases like Parkinson’s or multiple sclerosis that often leave people housebound and cut off from society, which in turn can accelerate the degeneration of their condition.

Singing, says Bossinger, was also especially helpful in the rehabilitation of female cancer patients.

“We found singing groups can help them to deal with the grief,” he said. The choir provided a forum for women to come together with other women and share their emotional pain, he added, and “they become much stronger on a psychological level.”

Preventative benefits

Bildunterschrift: Großansicht des Bildes mit der Bildunterschrift:  Music therapy is already used to treat mental illnesses, among other things

Singing is not just of value for those already suffering from a disease, argues Günter Kreutz, Professor of systematic musicology at the Carl von Ossietzky University in Oldenburg. Kreutz will be publishing a volume on music, health and wellbeing in 2011 that will bring together research across the fields of music, psychology and music therapy for the first time.

“Those who have learned a musical instrument in their life, or who dance regularly are less prone to develop degenerative diseases of the brain like Alzheimer’s or dementia so there is some initial evidence that cultural activities in the long run can have significant health benefits and reduce health risks significantly,” he said.

Singing for all

Health benefits aside, however, singing remains a joyful, universal activity.

“Originally, music was something in all cultures where everybody was involved,” said Bossinger.

According to Bossinger, research has shown that when people sing a mantra together, their hearts beat together.

“When people sing together it is not only emotional vibrating together it’s even the whole physiology – the bodies vibrate together, he said. “This is the really interesting thing that it touches us so deep that it’s like a resonance field vibrating together”.

For Parkinson’s sufferers like Monika, being surrounded by music has helped her do things she thought would never be possible.

“When very rhythmic exciting music is being played, I can dance like I used to be able to – it is extraordinary,” she said. “I don’t understand it, but I love it!”

Author: Sarah Stolarz

Editor: Kate Bowen

 

Healthcare News
24/01/2011

Two brothers are on a mission to row across the Atlantic in order to raise money for those with Parkinson’s disease.

Chris and Mat Cleghorn are currently journeying from Puerto De Mogan, Gran Canaria to Antigua in their effort, which is predicted to take anything between 40-70 days.

They set off on January 1st 2011 and will donate the proceeds from their once-in-a-lifetime fundraising mission to Parkinson’s UK.

Paul Jackson-Clark, fundraising director at the charity thanked the brothers for their effort.

“All the money raised will go to fund our vital work to find a cure and improve life for everyone affected by Parkinson’s  ,” he added.

This comes after researchers from the Netherlands had a letter published in the Lancet that claimed doctors should ask those with Parkinson’s whether they can still ride a bike to assist with the diagnosis.

Their study had shown that only four per cent of people with standard Parkinson’s disease could still ride a bicycle as opposed to 52 per cent of those with atypical Parkinsonism who said they could not.

 

Here’s an interesting article from Irish Medical Times.

January 13, 2011 By admin

Impulse control disorders amongst patients with Parkinson’s disease on dopamine replacement therapy present a “unique opportunity” for research into the neurobiology of impulsive behaviour, researchers say.

They reviewed retrospective, cross-sectional, case-control studies in which impulse control disorders were diagnosed using standardised instruments such as the South Oaks Gambling Screen and the Minnesota Impulse Disorders Interview. A special-purpose questionnaire was used to assess hypersexuality in a number of studies.

All studies used some kind of control group, whether Parkinson’s disease patients without an impulse control disorder or healthy individuals. Gambling behaviour was assessed in 18 of the 19 studies.

The prevalence of combined impulse control disorders varied from 3.5 per cent to 9.0 per cent, and was highest in patients receiving a dopamine agonist.
In one study of more than 3,000 Parkinson’s disease patients, 17 per cent of those prescribed a dopamine agonist displayed behaviour consistent with an impulse control disorder, the researchers said.

Higher doses of dopamine agonists were associated with an increased risk in some studies.

They also noted that estimates based only on medical records “almost certainly” underestimated the prevalence of these disorders. One study found that clinical charts recorded an impulse control disorder in only 27 per cent of patients with an active disorder diagnosed by interview.

Apart from studies of problem gambling, there were no large epidemiological studies of impulse control disorders in the general population with which to compare the prevalence in Parkinson’s disease.

There was a need for prospective studies, given the similarity between behaviours induced by dopamine replacement therapy and some behaviourally-based addictions.

“Addiction researchers may make an important contribution to the diagnosis and treatment of impulse control disorders in Parkinson’s disease,” they concluded.

Addiction 2010 doi:10.1111/j.130-0443.2010.03218.x



 

I hadn’t realized that he had PD. Read the article online.

By RON TODT, Associated Press Ron Todt, Associated Press Mon Jan 10, 6:06 pm ET

PHILADELPHIA – Even as Parkinson’s disease began taking its toll on Dick Winters, who led his “Band of Brothers” through some of World War II’s fiercest European battles, the unassuming hero refused, as always, to let his men down.

Friends accompanied him to public events, subtly clearing a path through the adoring crowds for the living legend, whose Easy Company’s achievements were documented by a book and HBO miniseries. His gait had grown unsteady, and he did not want to be seen stumbling.

Winters “didn’t want the members of Easy Company to know,” William Jackson said Monday of his longtime friend, who died last week at age 92. “Right up to the end, he was the company commander.”

An intensely private and humble man, Winters had asked that news of his death be withheld until after his funeral, Jackson said. Winters lived in Hershey, Pa., but died in an assisted-living center in neighboring Palmyra.

The men Winters led through harrowing circumstances and under fire from the German army never let the toll of time dull their own admiration for their commander.

“When he said `Let’s go,’ he was right in the front,” William Guarnere, 88, and dubbed “Wild Bill” by his comrades, said Sunday night from his south Philadelphia home. “He was never in the back. A leader personified.”

Another member of the unit living in Philadelphia, Edward Heffron, 87, called Winters “one hell of a guy, one of the greatest soldiers I was ever under.”

“He was a wonderful officer, a wonderful leader,” said Heffron, who had the nickname “Babe” in the company. “He had what you needed: Guts and brains. He took care of his men, that’s very important.”

Winters was born Jan. 21, 1918, and studied economics at Franklin & Marshall College before enlisting, according to a biography on Penn State’s website.

Winters became the leader of Company E, 506th Regiment, 101st Airborne Division, on D-Day after the death of the company commander during the invasion of Normandy.

During that invasion, Winters led 13 of his men in destroying an enemy battery and obtained a detailed map of German defenses along Utah Beach. In September 1944, he led 20 men in a successful attack on a German force of 200 soldiers. Occupying the Bastogne area of Belgium at the time of the Battle of the Bulge, he and his men held their place until the Third Army broke through enemy lines, and Winters shortly afterward was promoted to major.

“His leadership example both on and off the battlefield will continue to inspire `Screaming Eagle’ soldiers for years to come,” said Lt. Col. Patrick Seiber, a spokesman for the 101st Airborne Division, currently deployed to Afghanistan. “His principles for success on the battlefield are timeless, as they are as critical today in Afghanistan as they were on `Fortress Europe’ during World War II.”

After returning home, Winters married his wife, Ethel, in May 1948, and trained infantry and Army Ranger units at Fort Dix in New Jersey during the Korean War. He started a company selling livestock feed to farmers, and he and his family eventually settled in a farmhouse in Hershey, where he later retired.

Historian Stephen Ambrose interviewed Winters for the 1992 book “Band of Brothers,” upon which the HBO miniseries that began airing in September 2001 was based.

The miniseries followed Easy Company from its training in Georgia all the way to the war’s end in May 1945. Its producers included actor Tom Hanks and Steve Spielberg. Damian Lewis portrayed Winters.

“Dick Winters was at the Vanguard of representing `The Greatest Generation’ in bringing honor to all his Band of Brothers when he collaborated with Tom Hanks, Stephen Ambrose and me in the mounting of our tribute series,” Spielberg said in a statement. “He would not have wanted this credit. He would have simply asked all of us to never forget how his generation served this nation and the world in WWII.”

Winters himself published a memoir in 2006 titled “Beyond Band of Brothers.”

In 2009, an exhibit devoted to Winters was dedicated at the Hershey-Derry Township Historical Society. Winters was also the subject of a campaign to raise money to erect a monument in his honor near the beaches of Normandy.

Winters talked about his view of leadership for an August 2004 article in American History Magazine.

“If you can,” he wrote, “find that peace within yourself, that peace and quiet and confidence that you can pass on to others, so that they know that you are honest and you are fair and will help them, no matter what, when the chips are down.”

When people asked whether he was a hero, he echoed the words of his World War II buddy Mike Ranney: “No, but I served in a company of heroes.”

“He was a good man, a very good man,” Guarnere said. “I would follow him to hell and back. So would the men from E Company.”

Arrangements for a public memorial service are pending.

___

Associated Press writers JoAnn Loviglio and Randy Pennell contributed to this report.

___

Online:

The Richard Winters Leadership Project: http://easycompany.legacyconnect.com

Music and PD

 Uncategorized  Comments Off
Jan 112011
 
Have you notice that listening to music makes a difference in your tremor? When I’m feeling tense from sitting at the computer and/or my desk for a couple of hours I find that listening to music will take some of the muscle tension away. Makes sense to me.

Does music have charms to soothe Parkinson’s?

Man’s observation that his tremors stopped leads to pilot study

of The News-Sentinel

An amazing thing happens to Russ Eplett when he attends Fort Wayne Philharmonic concerts. The music appears to quell the symptoms of his Parkinson’s disease.

“When I sit down in the Embassy and my hand is shaking, as soon as the music starts, it stops,” he said.

Eplett shared his observation with Philharmonic President and CEO J.L. Nave III. That led to interest by the Philharmonic’s Innovation Task Force. The end result is a pilot study the task force will conduct in collaboration with IPFW’s music therapy department and the Fort Wayne Parkinson’s Support Group.

The study will look at the impact of music on Parkinson’s, a neurological disease.

To test the impact of its music, the Fort Wayne Philharmonic will perform three concerts at IPFW’s Rhinehart Recital Hall featuring string, woodwind and brass instruments.

About 35 people with Parkinson’s will attend the concerts and fill out a simple one-page survey using a Likert scale to assess their symptoms before, during and after the performances. A typical Likert scale asks respondents to rate a statement selecting one of five choices that range from strongly agree to strongly disagree.

The public is invited to these free concerts as well.

“We wanted to make it open to the public and free so the Parkinson’s patients wouldn’t just feel like guinea pigs,” said Pamela Kelly, a physician and chairwoman of the Philharmonic Innovation Task Force.

Participants will rate typical symptoms of Parkinson’s including tremors, stiffness, difficulty with handwriting, swallowing, energy level and dyskinesia, or involuntary movements.

“We wanted to keep it very simple,” Kelly said. “We had a list of probably 50 different symptoms.”

According to Nancy Jackson, director of IPFW’s music therapy program, the effect of music on Parkinson’s disease hasn’t been studied before. This pilot study could be a launching point for further investigation. It will answer the initial question, “Is there reason we should look more closely?” Jackson said.

Kelly believes this study is just a starting point. “I think it’s going to generate more questions than answers,” she said.

If the pilot study gives a reason for researchers to look into this issue further, “we’re very easily set up to take the next step,” Jackson said. They plan to record the live performances and play them for the people with Parkinson’s to see whether listening to the same music, but recorded rather than live, has the same effect.

As for Eplett, he already knows the answer to that. “If I take the same piece recorded and play it, it doesn’t have the same effect,” he said.

Eplett, who sings in the Philharmonic Chorus, loves watching and listening to the philharmonic musicians play music, and pays particular attention to the complexity of it — the rhythms and harmonies. He believes the intensity with which he listens to the music is what abates his symptoms.

“I strongly suspect it’s a matter of how much interest you have in the music,” he said.

For Eplett, who was diagnosed six years ago, the effects of live music are so profound the tremors quit during the live performance, resume during intermission and go away again when the second half of the performance begins.

When he sings in the chorus, however, his symptoms sometimes worsen.

“It’s because I’m tense,” he said. He worries the tremors will get so bad he’ll drop his sheets of music.

Medications for Parkinson’s can ease symptoms. However, Eplett said the medicine he takes works inconsistently on his symptoms. He said having Parkinson’s “really is annoying.” His Parkinson’s began with a tremor in his finger that progressed to his right hand; now he also has a tremor in his right foot. Parkinson’s gets progressively worse. Celebrities with the disease include Michael J. Fox and Muhammad Ali.

Because no studies have been done on the effect of music on Parkinson’s, it’s possible Eplett’s reaction is simply an anomaly. If that’s the case, the study would end.

Another possibility could be the power of suggestion creating a placebo effect. Others with Parkinson’s might think their symptoms get better when listening to music, when in fact they actually don’t. Subsequent studies eventually would weed out any placebo effect, Jackson said.

Eplett realizes he can’t go around all the time with a symphonic orchestra in tow to abate his symptoms. But he does hope the study will help researchers to “understand better why this effect happens and come up with something that can be used.”

Jackson’s hopes are similar. Ultimately, she’d like to see the research result in new techniques that could help those with Parkinson’s improve the quality of their lives.

 

Just got a call from the widow of Jim Sinnott asking for our mailing address to make a donation in his memory. You may have read this article in the Spokesman Review April 13, 2010. It’s worth reading again. Jim passed away on November 9, 2010 at the Spokane Veterans Affairs Medical Center, surrounded by his loved ones. He was 87.

***

The High Cost of Living

by Kevin Graman

Jim Sinnott survived Pearl Harbor, joined his nation in picking up the pieces of that shattered day and helped his generation forge a more secure world for the next.

Japanese dive bombers couldn’t stop the Navy radioman in 1941, but Parkinson’s disease is catching up with him nearly 69 years later.

But while the degenerative disorder threatens his life, the cost of long-term care threatens to unravel the realization of his dream – shared by many aging Americans – of financial security.

The 87-year-old veteran and his wife, Millie, have lived frugally and managed to put away some savings, which are now being drained by the $7,000-a-month cost of his stay at the Spokane Veterans Home.

Sinnott, confined to a wheelchair, went to live at the nursing home about three weeks ago, his son Larry said. Millie could no longer help him into his wheelchair or lift him after a fall.

Sinnott’s daughter, Dianne McNeal, says the care her father is receiving at the state-run facility is exceptional, but the country could do a better job of providing for its veterans.

“It’s not fair to him and a lot of American veterans,” McNeal said. “He was promised he would be taken care of for life.”

Because Sinnott’s medical condition is not connected to his military service, he is not entitled to long-term medical care benefits from the U.S. Department of Veterans Affairs.

Like the vast majority of Americans, he does not have long-term care insurance that would pay a portion of his care in a nursing facility.

Legislation championed by the late Sen. Edward Kennedy and recently signed by President Barack Obama could provide relief for families like the Sinnotts in the future.

The Community Living Assistance Services and Supports Act will provide an opportunity for Americans 18 and older to pay into a long-term government insurance program.

“It will be a big help in terms of changing the experiences of older Americans,” said Susan Reinhard, senior vice president for the AARP Public Policy Institute.

But the CLASS Act has come too late for Millie Sinnott.

The act does not become effective until 2011 and experts say it is unlikely to be made available before 2013. Participants then must pay into the voluntary program for five years before they are eligible to receive benefits, so it will be 2018 before anybody can make use of the CLASS Act for long-term care.

A study by the U.S. Department of Health and Human Services found that people who reach age 65 have a 40 percent chance of entering a nursing home. Yet fewer than 9 million Americans have long-term care insurance, according to the American Association for Long-Term Care Insurance.

Medicare, the federal insurance for the aged or disabled, pays only for medically necessary skilled nursing care and only under certain conditions. It does not pay for custodial care to assist with daily activities such as dressing or bathing.

Medicaid, the state and federal insurance for the poor, does pay when the state determines a patient qualifies for assistance. Sinnott is currently paying about $231 a day for care at the Spokane Veterans Home. Medicaid would pay about $174 a day.

Eventually Sinnott will qualify for Medicaid, but only after he and his wife “spend down” their savings.

Federal law allows for spousal impoverishment protections intended to ensure that the spouses of those residing in nursing facilities can live out their lives “with independence and dignity,” according to the Centers for Medicare and Medicaid Services.

When a couple applies for Medicaid, the couple’s resources are combined to determine eligibility. Their home, household goods, car and burial funds are not included in this assessment.

One half of the combined total is the “spousal share,” which is used to determine whether the spouse residing in a nursing facility meets the resource standard for Medicaid determined by each state.

A “protected resource amount” is subtracted from the couple’s combined resources for the spouse who is living at home. So the government cannot take all of Millie Sinnott’s assets. It has to leave her a monthly allowance.

What the Sinnotts are experiencing is very common, said Reinhard, of the AARP Public Policy Institute.

Once you’ve reached age 85, there is a high probability of needing long-term care, and it’s expensive, Reinhard said.

“Most people spend down within five or six months,” she said. “These are middle-class people who have worked hard, raised children and contributed to the country.”

<!–[endif]–>

http://media.spokesman.com/img/bits/logo-sr.png

April 13, 2010

The high cost of living

Federal law will kick in too late to help Pearl Harbor survivor

Kevin Graman
The Spokesman-Review

Tags: Class Act Jim Sinnott Long-term care medicaid Medicare nursing home pearl harbor Pearl Harbor survivor Veterans Affairs

http://media.spokesman.com/photos/2010/04/13/sr_08sinnott_04-13-2010_AVIDUTR_t210.jpg?74a72ef94756bccc16ea1c78066b52f96b62dbc7

Jim Sinnott, a Pearl Harbor survivor and WWII veteran, laughs with his daughter, Dianne McNeal, at the Spokane Veterans Home, where he’s been living since the symptoms of his Parkinson’s disease made it too difficult for his wife, Millie, to care for him at home.

Jim Sinnott survived Pearl Harbor, joined his nation in picking up the pieces of that shattered day and helped his generation forge a more secure world for the next.

Japanese dive bombers couldn’t stop the Navy radioman in 1941, but Parkinson’s disease is catching up with him nearly 69 years later.

But while the degenerative disorder threatens his life, the cost of long-term care threatens to unravel the realization of his dream – shared by many aging Americans – of financial security.

The 87-year-old veteran and his wife, Millie, have lived frugally and managed to put away some savings, which are now being drained by the $7,000-a-month cost of his stay at the Spokane Veterans Home.

Sinnott, confined to a wheelchair, went to live at the nursing home about three weeks ago, his son Larry said. Millie could no longer help him into his wheelchair or lift him after a fall.

Sinnott’s daughter, Dianne McNeal, says the care her father is receiving at the state-run facility is exceptional, but the country could do a better job of providing for its veterans.

“It’s not fair to him and a lot of American veterans,” McNeal said. “He was promised he would be taken care of for life.”

Because Sinnott’s medical condition is not connected to his military service, he is not entitled to long-term medical care benefits from the U.S. Department of Veterans Affairs.

Like the vast majority of Americans, he does not have long-term care insurance that would pay a portion of his care in a nursing facility.

Legislation championed by the late Sen. Edward Kennedy and recently signed by President Barack Obama could provide relief for families like the Sinnotts in the future.

The Community Living Assistance Services and Supports Act will provide an opportunity for Americans 18 and older to pay into a long-term government insurance program.

“It will be a big help in terms of changing the experiences of older Americans,” said Susan Reinhard, senior vice president for the AARP Public Policy Institute.

But the CLASS Act has come too late for Millie Sinnott.

The act does not become effective until 2011 and experts say it is unlikely to be made available before 2013. Participants then must pay into the voluntary program for five years before they are eligible to receive benefits, so it will be 2018 before anybody can make use of the CLASS Act for long-term care.

A study by the U.S. Department of Health and Human Services found that people who reach age 65 have a 40 percent chance of entering a nursing home. Yet fewer than 9 million Americans have long-term care insurance, according to the American Association for Long-Term Care Insurance.

Medicare, the federal insurance for the aged or disabled, pays only for medically necessary skilled nursing care and only under certain conditions. It does not pay for custodial care to assist with daily activities such as dressing or bathing.

Medicaid, the state and federal insurance for the poor, does pay when the state determines a patient qualifies for assistance. Sinnott is currently paying about $231 a day for care at the Spokane Veterans Home. Medicaid would pay about $174 a day.

Eventually Sinnott will qualify for Medicaid, but only after he and his wife “spend down” their savings.

Federal law allows for spousal impoverishment protections intended to ensure that the spouses of those residing in nursing facilities can live out their lives “with independence and dignity,” according to the Centers for Medicare and Medicaid Services.

When a couple applies for Medicaid, the couple’s resources are combined to determine eligibility. Their home, household goods, car and burial funds are not included in this assessment.

One half of the combined total is the “spousal share,” which is used to determine whether the spouse residing in a nursing facility meets the resource standard for Medicaid determined by each state.

A “protected resource amount” is subtracted from the couple’s combined resources for the spouse who is living at home. So the government cannot take all of Millie Sinnott’s assets. It has to leave her a monthly allowance.

What the Sinnotts are experiencing is very common, said Reinhard, of the AARP Public Policy Institute.

Once you’ve reached age 85, there is a high probability of needing long-term care, and it’s expensive, Reinhard said.

“Most people spend down within five or six months,” she said. “These are middle-class people who have worked hard, raised children and contributed to the country.”

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© 2012 Parkinson's Resource Center of Spokane Suffusion theme by Sayontan Sinha