Support group 1:30 tomorrow for Parkinson’s Patients and Care Partners @PRCSpokane Deaconess Health Education Center room 266. There will be snacks.

Support group 1:30 tomorrow for Parkinson’s Patients and Care Partners @PRCSpokane Deaconess Health Education Center room 266. There will be snacks.
The SOVREN vintage race event over the weekend was amazing. If you didn’t make it this year no worries; there’s always next year.
Great article with lots of photos in the Spokesman Review: http://www.spokesman.com/picture-stories/2010-spokane-festival-speed-historic-races/
What: “The Many Faces of Caregiving”
Where: The Lincoln Center, 1316 N. Lincoln St., Spokane, WA 99201
When: Wednesday, May 18 2011 from 8a.m. – 4:15 p.m.
Presented by: Elder Services (509-458-7450) – Family Caregiver Support Program
Fee: No cost to UNPAID Caregivers! All others $25 (no continuing education credit)
Goal: To provide unpaid caregivers with information and resources to support them in their caregiving role.
Speakers will present on a variety of topics throughout the day. Participants will have an opportunity to browse booths during check-in (8:00 a.m. – 8:45 a.m. ), morning break, lunch, and afternoon break.
Read the WSU request by clicking here.
Please consider participating in a discussion group with researchers from Washington State University and Providence Health Care.
We would like to improve the hospital discharge experience. By participating in this focus group, you will contribute to a ground-breaking study funded by the Agency for Healthcare Research and Quality (AHRQ) that explores factors associated with medical error and subsequent medical malpractice suits.
Titled Transitional Care Medication Safety and Medical Liability: Closing the Chasm, the purpose of the study is to evaluate process and outcome factors associated with medication discrepancies and adverse events that increase medical liability.
We are asking you to participate in a “mock” focus group that will last 1 ½ – 2 hours and you will be paid $20 in appreciation of your time for attending and participating (date, time and location to be determined).
Why is this focus group being done? The purpose of this “mock” focus group is to help us improve the process we will use when we conduct actual focus groups with professionals who are
stakeholders in the outcomes of patients being discharged from the hospital. We believe the experience of conducting the “mock” focus group will help us streamline the procedures for upcoming actual focus groups so that our research process is more efficient and effective. For more information about participating in this research project, please call E’lise Balogh at (509) 324-7411. If no one answers, please leave a message with your name and phone number. Thank you!
Transitional Care Medication Safety
Principal Investigator:
Cynthia F. Corbett, PhD, RN
Washington State University College of Nursing
SNUR Office 422-D
P.O. Box 1495
Spokane, WA 99210
8:00 a.m. – 5:00 p.m. Monday- Friday: (509) 324-7404
Introduction
You are being invited to take part in a practice focus group that will mirror an actual focus group research study we are conducting about the hospital discharge process related to medications. We are interested in knowing how you, as a patient or care giving family member, might feel about the medication transfer process for patients transferring from hospital to home. Your participation in this practice focus group will help us practice the process of conducting the actual focus group, and help us streamline our format to be sure that we are conducting the sessions in an easy and understandable manner. Your agreement to take part in this practice focus group is voluntary and of your own free will. This consent form may contain words you do not understand. You should ask the people involved with the study to explain any words or information you do not clearly understand. You may discuss this consent form with family, friends, or faculty members before making a decision to join the study. The Institutional Review Board (IRB) -Spokane has approved this study. This study is funded by a grant from the Agency for Healthcare Research and Quality (AHRQ).
Why is this study being done?
The purpose of this practice focus group is to help us improve the process we will use when we conduct actual focus groups with other patients discharged from the hospital and care giving family members of patients discharged from the hospital within the last 6 months. We believe the experience of conducting the practice focus group will help us to streamline the procedures for upcoming actual focus groups so that our research process is more efficient and effective.
How many people will take part in these mock focus groups?
Approximately 8-10 other people who have been patients or had a family member who was hospitalized within the last 2 years will participate in one practice focus group to help us improve our methods for conducting the actual focus groups with patients and family members of patients who experienced hospitalization during the past 6 months. Also, approximately 7-10 healthcare and law students will participate in another practice focus group to help us improve our methods for conducting the actual focus groups with healthcare and legal professionals (nurses, pharmacists, physicians, social workers, lawyers and health plan administrators).
What is involved with this study?
If you decide to be in the study, you will attend a practice focus group with 8-10 other people who have been patients or had a family member who was hospitalized within the last 2 years. To be in the study, you must be able to be at the meeting place (most likely Providence Holy Family Hospital) at a specific date and time to meet with the study personnel and other patients and care giving family members. At the practice focus group, we will talk about some general problems people have with their medicines after being discharged from the hospital. We will also present an example of someone who had problems with medicines after being discharged from the hospital. We will then ask the group questions such as:
The meeting will last about 1 ½ – 2 hours. The exact time depends on how much the group talks about each question.
If you decide to help with the study, when you arrive at the meeting room, we will ask you to sign this consent form. By signing this form you agree to participate in the practice focus group. You may choose to stop participating in the focus group at any time, and you may chose not to talk about certain questions. You only have to say something during the meeting when you want to. If you decide to participate in the practice focus group or not, or if you choose to stop participating in the meeting, it will not affect your relationship in any way with the current or future care you receive from Providence Health Care, with any health care provider, or with Washington State University.
How long will I be in the study?
You will be in the study from just prior to the meeting when you sign the consent form until the end of the meeting.
What are the risks of the study?
There are very few potential risks and discomforts related to being in the study.
Because it is a group meeting, there is a chance that what you say will not be kept confidential. All participants at the meeting will be asked to keep the information confidential. However, the researchers cannot be sure that the other people at the meeting will keep from sharing the information. The meeting will also be tape recorded (voice only) to allow the researchers to review the meeting, and if necessary, to improve their processes. The audio tapes will be kept in a locked file cabinet in a locked office. However, there is always a rare chance that they could be misplaced or someone not involved with the research could obtain them.
Are there benefits to taking part in the study?
You will not receive any direct benefit from being in the study. By helping us improve our focus group processes, your participation may ultimately help the research team, Providence Health Care and other health systems improve their discharge processes related to medications.
What other options are there?
Participating in the practice focus group is voluntary. You can choose not to participate.
What would prevent me from being in this study?
Being under the age of 21 or not being able to speak or understand English would prevent you from participating in this study. Not being able to drive or find a ride to the meeting at the specified date and time would prevent you from being in the study.
What are the costs?
There are no costs for you to be in this study except for transporting yourself to the study site. To thank you for your time and to help pay for transportation costs to the meeting, you will be given $20 cash for participating. You will be paid at the end of the meeting. If you participate in less than half of the meeting, you will be paid $10 at the time you leave the meeting.
Who pays for study related illness or injury?
Your risk of illness or injury while participating in this study is very small. If you do experience illness or injury during the time you are in this study, we will ask you to seek medical help or, if necessary, we will call 9-1-1. No funds have been set aside for treatment of injury or illness, either as a direct or indirect result of participating in this study. Any medical expenses will be billed to you or your insurance company. If you have questions regarding illness or injury related to this study, please feel free to discuss your questions with Cindy Corbett at (509) 324-7404 prior to the meeting or in person before the meeting starts on the day of the meeting.
What about confidentiality?
Every effort will be made to keep the information you share at the meeting private. All participants in the meeting will be asked to keep the information confidential, including the names of people who participated in the practice focus groups. The tape recordings of the practice focus groups will be kept in locked files that can be opened only by the research team. At no time will your personal information be made available to anyone but the research team except as required by law. Certain state and federal laws allow boards that protect research participants to request access to study information for certain reasons. However, these boards will also keep the information confidential. Descriptions about practice focus group participants will be reported only in the aggregate without individual identifying information.
What are my rights as a participant?
Washington State University and Providence Health Care will receive compensation from the study sponsor for research related expenses. None of the investigators, Washington State University or Providence Health Care will benefit financially from the study or the study findings. If you have any questions about your rights as a participant in this research study, you may contact the Institutional Review Board-Spokane at (509) 343-2121.
Can I stop participating in the study?
The agreement to take part in this study is voluntary. If you agree to take part, you may choose to stop and withdraw your consent at any time. Your choice to not participate or stop participating will not affect your relationship in any way with Providence Health Care, with any health care provider, pharmacist or with Washington State University. You may choose not to answer some of the questions. Again, you may stop or withdraw from the study at any time. The researchers reserve the right to remove you from the practice focus group for your own safety or for the safety of the other research participants, or if you are disruptive or rude to other participants during the focus group.
Participant consent and legal rights
Your signature (on the form) indicates that you have read, or had read to you, the above information, that you have discussed this research study with the research team, and that you have decided to participate based on the information provided. Bysigning this consent, you give permission to Cindy Corbett and her research team to use the information and findings to improve their focus group processes.
You also understand that the researchers agree to protect the privacy and confidentiality of the information gathered during this study within the limits of Washington State Law. On signing this consent form, you understand that you are not waiving any of your legal rights and that you will be given a copy of this signed consent.
You may contact Cindy Corbett at (509) 324-7404 at Washington State University, to get information or ask questions that you may have about this study at any time.
There’s a terrific article about our own Spokane Tremble Clefs in today’s Spokesman Review. Thanks to freelance writer extraordinaire Cindy Hval.
The sprightly, upbeat melody of “Side by Side” echoed down the halls of Rockwood South on March 29, as members of Tremble Clefs serenaded residents and guests.
Tremble Clefs is a singing ensemble composed of people with Parkinson’s disease and their caregivers. The program is one of the services offered by Parkinson’s Resource Center of Spokane. The center also sponsors a dance group and several support groups.
While the most visible sign of Parkinson’s is trembling, some patients experience loss of voice volume and control. So, in addition to dealing with tremors that can make it difficult to walk confidently or button a shirt, many patients struggle just to be heard.
But the singers in Tremble Clefs had no problem making themselves heard as they launched into a robust version of “Don’t Fence Me In.”
Dr. John Moyer grinned as he sang. His wife Joanne Moyer said, “He was diagnosed with Parkinson’s in 1998. It got to where I could hardly understand him – his voice was so low.”
But then he joined Tremble Clefs. “It’s amazing how quickly participating in the group improved his volume and projection!” She smiled at her husband, who remained seated as he sang.
Moyer said, “His balance is increasingly poor, but he loves this!”
Several years ago Spokane speech-language pathologist Sarah Nielsen learned about Tremble Clefs at a conference for health care professionals. Research has shown that singing can dramatically help patients struggling with Parkinson’s-induced “soft voice.” Nielsen said, “I came back eager to start a group, but I have no singing or musical experience.”
However, she soon met Ruth Palnick. “Ruth is a beautiful singer,” said Nielsen. Palnick also has Parkinson’s disease. Together they launched Spokane’s Tremble Clef program in 2005. The group meets each Tuesday at Rockwood South Hill.
“I was the therapeutic speech part and Ruth had the musical background. It was a perfect combination,” said Nielsen. “The idea isn’t to produce great singers, but to help them (Parkinson’s patients) with their speech.”
The women were amazed by what followed. Palnick beamed as she said, “The thing that happened along the way is that it turned into a wonderfully supportive group.”
Shirley Jakubowski agreed. “We share the same joys and struggles – it’s a real friendship society.” When diagnosed with Parkinson’s three years ago, she and her husband Walter Jakubowski, searched the Internet for support systems in Spokane. He found the Parkinson’s Resource Center and Tremble Clefs.
Now, the couple helps oversee the growing group. The organization is in its sixth year and has grown from about a dozen members to 30-35.
Founders Palnick and Nielsen have since stepped down from their leadership roles. Pam Baldwin now serves as musical director and Doreen Nicholas, clinic director of the Eastern Washington University/Washington State University Speech Language Pathology department at the Riverpoint campus, oversees the therapeutic component of the program. “Tremble Clefs is dear to my heart,” she said. “My mother has Parkinson’s.”
Each week, graduate students from the university program meet with the Tremble Clefs and lead the singers in a series of vocal exercises. Nicholas said, “My students think I’m kidding when I tell them their clinical assignment is singing with the Tremble Clefs.”
Before the spring concert, graduate students Alecia McDaniel and Sarah Bates led the singers and the audience through vocal warm-ups. “We love it,” McDaniel said. “It feels like a break from the stress of clinic.”
Following the performance, Jakubowski invited the audience to participate in a singalong. As accompanist Donna Douglas played the stirring strains of “God Bless America,” the audience enthusiastically joined in.
Afterward, as folks chatted and munched on chocolate chip cookies, Tremble Clef member Bettie Kinyon praised the therapeutic benefits of the weekly ensemble. “Every time I go, my husband notices the difference – he says I talk louder the next day.”
But Kinyon also enjoys the supportive camaraderie of the group.” We rarely focus on things we can’t do,” she said. “Instead, we focus on what we can do.”
XX
The connection is still unknown, but it’s something to consider.
(Reuters Health) – People with diabetes may have a slightly increased risk of developing Parkinson’s disease, a new study suggests — though the reasons for the link, researchers say, are far from clear.
The study, of nearly 289,000 older U.S. adults, found that those with diabetes at the outset were more likely to be diagnosed with Parkinson’s over the next 15 years.
Of 21,600 participants with diabetes, 172 (0.8 percent) were eventually diagnosed with Parkinson’s. That compared with 1,393 cases (0.5 percent) among the 267,000 men and women who were diabetes-free at the study’s start.
When the researchers accounted for other factors — like age, weight and smoking habits — diabetes itself was linked to a 41 percent increase in the risk of future Parkinson’s.
That, however, does not prove that diabetes is a cause of Parkinson’s, and the reasons for the connection remain unknown, said senior researcher Dr. Honglei Chen, of the U.S. National Institute of Environmental Health Sciences.
“Really, the evidence at this time is very preliminary,” Chen told Reuters Health.
People with diabetes, he said, should simply continue to do the things already recommended for their overall health — eating a well-balanced diet and getting regular exercise.
Chen and his colleagues report the findings in the April issue of the journal Diabetes Care.
Diabetes and Parkinson’s disease would seem, at first, to be unrelated.
Diabetes arises when the body can no longer properly use the blood-sugar-regulating hormone insulin. Parkinson’s is a brain disease in which movement-regulating cells in the brain die off or become disabled, leading to symptoms like tremors, rigidity in the joints, slowed movement and balance problems.
But Chen said the connection between diabetes and Parkinson’s risk could mean that the two diseases share some underlying mechanisms.
One possibility, he speculated, is chronic, low-level inflammation throughout the body, which is suspected of contributing to a number of chronic diseases by damaging cells. Oxidation – the process fought by anti-oxidants – is another.
On the other hand, Chen and his colleagues say, there might be something about diabetes – like a problem regulating insulin — that contributes to Parkinson’s. But that remains to be proven.
A few large studies have looked at the diabetes-Parkinson’s link before, with conflicting results.
The current study, Chen said, included a larger number of people with Parkinson’s. And unlike most past studies, it looked at the duration of people’s diabetes.
In general, Chen’s team found, the higher Parkinson’s risk was largely seen among people who’d had diabetes for more than 10 years before the start of the study.
That, Chen said, supports the idea that diabetes came first, before Parkinson’s, rather than the other way around.
But more studies, he said, are needed to understand why the connection exists, and what, if anything, can be done about it.
SOURCE: bit.ly/hrUWrc Diabetes Care, April 2011.
Northwest Collaborative Care in Spokane has funding for caregiver respite. To receive program guidelines and the application form contact:
Evie Davis
Executive Director
Northwest Collaborative Care
Phone: (509) 999-4089
www.nwcollaborativecare.org
Great story today in the Spokesman Review about the Bill and Jay Warren. Lovely photo of the couple too. Check it out online: http://m.spokesman.com/stories/2011/mar/24/love-story-couple-made-family-world-travel-part/
March 24, 2011
Bill and Jay Warren arrived in Spokane in 2007, via New Jersey, Texas, the Philippines, Nepal and points in between. The couple met on a blind date in 1946.
Bill had served two years in the Army after being drafted at age 18. “I shipped out to Europe,” he recalled. “We were replacement troops for those lost in the Battle of the Bulge.”
He doesn’t gloss over his combat experience. “A lot of it was horrible – nothing to glorify war.”
The young soldier was part of an ammunition and pioneer platoon engaged in a fierce struggle along the Siegfried Line. “Because we were a munitions group, we were sent out at night,” he said.
One night he fell into an exhausted sleep under a table. “They were looking for me to go out on patrol, but they couldn’t find me,” Bill said. He paused and glanced down at his hands. “Out of the 12 men who went out that night, only one came back.”
Upon his discharge from the Army, he enrolled at Rensselaer Polytechnic Institute in New York. A fraternity buddy set him up with Jay, who was attending college nearby. They went to a football game, followed by supper and dancing at the fraternity house.
“Honestly, I remember thinking, I wasn’t impressed with Bill,” Jay recalled. Instead she viewed the date as a way to meet other fellows in his fraternity.
Bill, however, was smitten and quickly asked for another date. By 1947 they were an item. “We met each other’s families,” Jay said. “And our mothers had tea one afternoon.”
Long conversations about world affairs, travel and children became a hallmark of their courtship. “I always enjoyed being with her,” said Bill.
Jay laughed. “We talked politics – eventually we agreed.”
During the summer of 1948, they both took jobs in Cape Cod at an inn. “There was a lake across the street, and a mountain with a lookout tower,” Jay said.
One evening, they hiked up to the lookout tower, and Bill took a ring out of his pocket and proposed. Jay’s parents were staying in a nearby motel, and the excited couple pounded on their door and woke them, to share the news.
“My dad said, ‘We have to toast this!’ ” said Jay. “But all they had in the hotel was scotch and cranberry juice, so that’s what we toasted our engagement with.”
They married on Aug. 20, 1949, and a year later moved to Colorado so Bill could pursue a master’s degree in management engineering. However, halfway through the year, he was recalled by the Army. The Korean War had begun.
Because he’d done ROTC in college, this time Bill went in as a second lieutenant. “I served a year and a half and never had to go overseas,” he said.
In 1951, the couple moved to Texas where Bill taught school and the first of their children arrived. When they’d been dating, the couple had talked about how many children they wanted. They agreed four kids would be nice, but six would be perfect. They ended up with seven.
Jay said large families were common at that time. “I think it was a result of having lived through the war years,” she said. “It was a relief. The world was positive – at least our little part of it was.”
Bill received his master’s degree in 1954 and accepted a job at Harvard Business School. A succession of teaching jobs took the growing family across the East Coast. Eventually, they wound up in Massachusetts where Bill worked in the education department of Polaroid.
While there they heard about President Kennedy’s Peace Corps. “In those long talks we had before we married, we talked about wanting to work overseas,” Jay said.
When Bill was offered a position with the newly formed Peace Corps he immediately took it, without discussing it with his wife. He knew she’d be thrilled – and she was.
“It was like something wonderful dropped in our laps,” she said. So, with six children under age 10, they moved to the Philippines.
“Our families were wonderfully supportive,” Jay said. “They never once said, ‘What the hell are you guys doing!?’ ”
After two years in the Philippines, the family traveled to Nepal, where Bill served as Peace Corps director for one year.
In 1964, they moved to New Jersey, where their seventh child was born. They weren’t there long. Bill had taken a job with the Education Development Center and was soon asked if he’d be willing to relocate to Kenya.
Once again, the family eagerly embarked on a new adventure. Bill enjoyed his work. “I developed hands-on science material for kids in English-speaking areas of Africa,” he said. “That program is still being used in eight countries.”
Jay found plenty to do as well. “She was never home,” Bill said, laughing. Thanks to household help, she was able to work in local orphanages and implement adoption programs.
From Kenya, they returned to the U.S. Bill took a job as an elementary school principal in Massachusetts. And when their youngest child started kindergarten, Jay went back to college, eventually earning a master’s degree in social work.
She worked for an educational collaborative, and after 14 years as a school principal, Bill joined her, taking a position as a therapist for troubled teens.
In the late 1980s they both began to cut back their caseloads, and finally retired in 1992. Several years ago Bill was diagnosed with Parkinson’s disease. In 2007, the couple made the cross-country move to Spokane where their two youngest children live.
When asked the secret to a six-decade marriage, Jay shook her head and laughed. “I don’t give advice anymore.”
Bill said marrying Jay was the best decision he ever made. “She’s the most wonderful person in the world. I have Parkinson’s but she is there for me. My nickname for her is Wonder Woman.”
His wife shrugged off his praise. “I don’t do anything major – I button his buttons,” she said.
“Driving is major!” Bill countered.
“Yes, I do the driving now,” she agreed.
From their South Hill living room they watched a storm swoop in. Bill cleared his throat. “Wherever we traveled, as long as we were together – it was home.”
Love stories celebrates relationships that are strong and enduring. Whether you’re dating, recently married, or have passed the 50-year mark, let us tell your tale. E-mail your suggestions to correspondent Cindy Hval at dchval@juno.com.
http://m.spokesman.com/stories/2011/mar/24/love-story-couple-made-family-world-travel-part/
The Rockwood Manor South on Spokane’s South Hill is once again open to the public. Consequently, our Tuesday, March 15 session will be at Rockwood from 1-2 PM.
We’ve been told that they have really missed us at Rockwood Retirement on the South Hill. So, do your homework and get those great-sounding voices ready to sing LOUD so everyone there knows we are back!
We will be rehearsing for our March 29 performance.
Hope to see you Tuesday!
Walt & Shirley J.
2903 East 25th Avenue
Spokane, WA 99223-4992
Phone: (509) 536-6650
(800) 727-6650
On the first weekend of June 2011, the high-pitched whine of Ferrari, Porsche, Alfa Romeo and Lotus race cars will mix with the low rumble of Corvettes, Ford Cobras, Chevrolet Camaros and Ford Mustangs as the Society of Vintage Racing Enthusiasts (SOVREN) holds the first annual “Spokane Festival of Speed” at Spokane County Raceway. More than 150 vintage sports cars, sedans, and formula racing cars of the 1950s, ’60s and ’70s are expected to travel from all over the Pacific Northwest to compete in three days of racing on the long straights and tight hairpin corners of the 2.25-mile road course.
Racing enthusiasts Bill Simer, Jim Sullivan, Bruce Hunt, Jim Sloane and Paul Jaremko are the local organizers for this SOVREN event; Jaremko Nissan and other local businesses are providing sponsorship and support to cover event expenses. Sanctioning for this first-ever vintage race car event in Spokane was made possible, in part, by the recent revisions and safety improvements made to the race track by Spokane County. These revisions to the road course make the racing facility a much more attractive venue for the rare and expensive vintage race cars that compete in the SOVREN racing series, as well as making the facility safer for participants and spectators.
All spectator admissions from the race will benefit the Parkinson’s Resource Center of Spokane (the PRC), a 501(c)3 charitable nonprofit organization that offers a unique and comprehensive menu of free services to Inland Northwest PD clients and their family members, caregivers and friends who support them. The vision of founder Ed Ewell, diagnosed with Parkinson’s disease in 1999, and his wife Jacquie has come to fruition with the PRC and its mission: “Serving to enhance the quality of life of people affected by Parkinson’s disease through empowerment, education and awareness.”
The PRC offers support groups (including for women with PD, for those with young-onset PD, for caregivers and for those with dystonia) plus fun and therapeutic activities: The Tremble Clefs have a great time singing popular favorites while getting the therapeutic benefits of facial and speech therapy; the popular Dance for PD group gains fluid movement, balance and flexibility while dancing to live accompaniment in a dance studio with a certified instructor; and the annual Carnival of Wellness is a collaboration among experts in pharmacy, physical and occupational therapy, speech therapy and medical care, all focusing on quality of life with PD. Throughout Washington, Oregon, Idaho, Montana and Utah, including in under-served rural communities, the PRC partners to provide monthly TeleHealth interactive video conferences with experts on various aspects of life with PD.
The PRC strives to expand proven and innovative programs for the benefit of the Parkinson’s disease community and depends upon volunteers and donations. The PRC board of directors, staff and clients are most grateful to be named the beneficiary of the first annual “Spokane Festival of Speed” vintage car racing event, June 3-5, presented by the Society of Vintage Racing Enthusiasts (SOVREN).
For more information about the PRC go to our Facebook page, follow along on Twitter, or phone the office at (509) 473-2490. For more information about the Society of Vintage Racing Enthusiasts (SOVREN), visit www.sovren.org.